Hypermobility Links

Not Just Bendy – also smart, educated and mighty

Hypermobility Links

Hypermobile-Ehlers-Danlos Syndrome, Joint Hypermobility Syndrome and Hypermobility Spectrum Disorder – can all have hypermobile joints (now or in the past) and sometimes other issues related to connective tissue issues.

Knowledge IS power but everyone with hypermobility presents differently. Try not to get too overwhelmed by all the information on the internet (including the hypermobility links and hypermobility references below).

Take your time and let your therapist guide you on where to start and how to continue on your journey.

This is not an extensive list but some of Not Just Bendy’s favorite hypermobility links to info sites and a good place to begin your research. Please ask your Not Just Bendy Hypermobility Services Physiotherapist for guidance on your priority areas to focus on initially.

Please note: No responsibility is taken for any information provided on any of the links listed. This is not to be considered to be medical advice. Please consult your own medical practitioner for advice to suit your personal circumstances.

 

 Hypermobility is not just being bendy
Hypermobility is not just being bendy. Common issues associated with hypermobility

General Overview Hypermobility Links & Websites

General Overview Books

Common Postural Issues and Hypermobility References

Autonomic Dysfunction (Dysautonomia) including Postural Orthostatic Tachycardia Syndrome(POTS)

GUTS Issues and Diet Hypermobility References

Hormones & Periods

Fatigue, Activity Tracking & Pacing

  • Cresta Fatigue Guide – excellent workbook for problem solving fatigue
  • Pacing activity ideas from www.PainManagement.org
  • Runkeeper app – measures distances walked.
  • Fitbit/ Apple Watch/Garmin etc– worn on the wrist these devices can measures daily steps, heart rate and sleep cycles.
  • Pedometer – to measure daily steps. Many smart phones have a built in pedometer (for iPhone: look in the Health app) and you can get more advanced options from the app store.
  • Sleep Tracker app
  • Activity Diary – can be used to record your activity, sleep and pain level. You can make your own, choose an app or download worksheets
  • Fall Detection – Apple Watch (on series 4 & 5)

Chronic Pain Management

Mindfulness/Meditation

  • “Headspace” – www.headspace.com or download headspace phone app. Ten minute mindfulness meditations made simple. First ten meditations are free. Useful animations about the brain and negative thoughts.
  • Buddhify app
  • Smiling Mind app – also has meditations for children and adolescents
  • 1 Giant Mind app
  • “The Happiness Trap” or the comic version “The Happiness Trap Pocketbook” by Russ Harris are excellent publications that cover the basics of ACT (acceptance and commitment therapy) and mindfulness. www.actmindfully.com.au
  • Spotify music app – search for mindfulness, meditation or relaxation.

Helpful Equipment/Accessories

  • Hip Pain Help – Hip & Pelvic pain website by Australian physiotherapists Dr Alison Grimaldi, Sharon Hennessey & Kirsty McNab hippainhelp.com
  • Free Podcasts by PhysioTec practice principal Dr Alison Grimaldi on lateral (outer thigh) hip pain and hamstring tendinopathy (buttock pain) dralisongrimaldi.com/podcasts/
  • Silver Ring Splints – can be worn on fingers/thumb joints to stabilize them. They can help with hand pain/fatigue with writing/use and decrease dislocations. Cheaper variants often found online eg. www.zebrasplints.org/. Oval 8 splints are a plastic version that can be fitted at Not Just Bendy.
  • Wrist Widgets; wrist braces that also allow good hand function while being supportive. Available at our clinic or wristwidget.com.au/
  • Body Braid – arm braid bodybraid.com/products/h An innovative elastic brace to assist with shoulder instability. We have one in our clinic as a demo product.
  • Therapeutic Pillows – stock a wide range of pillows to support the hypermobile body in every position. Good quality and durable products.
  • Eggshell Mattress Overlay. Available from Clarke Rubber and often Target/spotlight – pressure relief for hips and shoulders can decrease pain and improve sleep quality
  • Dr Graeme General Purpose Massager – is a hand help device which is very helpful is reducing muscle tightness and joint stiffness. Available from our clinic or www.drgraeme.com/products/general-purpose-massager

Please note: No responsibility is taken for any information provided on this site or any of the links listed. These links are not and do not imply specific individual medical advice. Please consult your own medical practitioner for advice to suit your personal circumstances.

 

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    It’s not how many times you get knocked down that count, it’s how many times you get back up. ” —George A. Custer